October 12, 2007
Yesterday we officially learned what we had suspected (and feared) was the case. Audrey Maria has Trisomy 18 – which is “a genetic disorder associated with the presence of extra material for chromosome 18”. It explains the health problems she has endured thus far – and also means her time with us will probably be very brief. Today she is being transferred back to John Muir Hospital in Walnut Creek so she can be closer to home. (Because of her condition, no surgeries will be performed which was the reason she was moved to Children’s.) It is possible she may come home in a few days. We will be working out those details with the doctors in the next day or two. Sara and I continue to be appreciative of your prayers – and all of the assistance we are receiving from family and friends. Email is probably the best way to communicate as we can then read and reply when we are able to do so.
There are difficult days ahead – but we continue to move forward in faith, finding comfort in our Father’s perfect love, knowing His hand is upon our family. We are grateful for Audrey, for who and what she is, and we are grateful that we have been blessed to have her as a part of our family.