As we had hoped, we were able to bring Audrey home last Thursday afternoon. While it has introduced the ‘normal’ challenges of having a new born in the home, these are gladly traded for the daily treks to the hospital. Audrey continues to do well. She is eating regularly and is showing no ill affects from her NEC (intestinal issue). She is continuing to take two medications for her heart (orally now) and that condition seems to be stable. She was 4 lb 7 oz at her last weigh-in. Her release from the hospital placed her in our care with the support of Comfort for Kids, which is the pediatric arm of Hospice of the East Bay. We have a wonderful support team of nurses (particularly Sharon) working with our pediatrician. It is a great comfort to know they are only a phone call away.
Among the ‘normal’ challenges mentioned above is Audrey’s having her days and nights mixed up. She seems to sleep most of the day away and wants to eat about every 90 minutes from midnight to dawn. Her brothers and sisters are adjusting well – and still fight over who gets to hold her. We broke out the Sassy seat this morning and she joined us at the breakfast table. At times – it is easy to forget that her time with us will be short as we work thru the daily issues and tasks. However at other times (and probably most of the time for Sara) thoughts of her leaving are our constant companion. We remain exceedingly grateful to the many, many friends and family who continue to help and support us with play dates and meals etc.